Wellness Resource Library
Communities of Interest
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General Health Care Resources
Patient Advocacy, Financial Assistance, and Health Care Management
The Alliance for Patient Access: https://allianceforpatientaccess.org/
Patient Advocate Foundation: http://www.patientadvocate.org/
National Financial Resource Directory: https://www.patientadvocate.org/explore-our-resources/national-financial-resource-directory/
Partnership for Prescription Assistance: https://www.pparx.org/
The Empowered Patient Coalition: https://empoweredpatientcoalition.org/
Engaged Patients: https://engagedpatients.org/
National Coalition for Cancer Survivorship: https://www.canceradvocacy.org/
Self-Management Resource Center (formerly the The Stanford Patient Education Research Center): https://www.selfmanagementresource.com/
Integrative Health and Medicine
National Center for Complementary and Integrative Health: https://nccih.nih.gov/
The Institute for Integrative Health: https://tiih.org/whats-integrative-health
Academic Consortium for Integrative Medicine and Health, Member listing: http://www.imconsortium.org/
The University of Arizona Center for Integrative Medicine: https://integrativemedicine.arizona.edu/index.html
True Health Initiative: http://www.truehealthinitiative.org/
Blue Zones: https://bluezones.com/
Western Medicine (General Medical Information)
Mayo Clinic, Diseases and Conditions: https://www.mayoclinic.org/diseases-conditions
Medline Plus: https://medlineplus.gov/
Healthfinder: https://healthfinder.gov/
National Library of Medicine PubMed database: https://www.ncbi.nlm.nih.gov/pubmed/
PubMed Interactive tutorial: https://www.nlm.nih.gov/bsd/viewlet/search/subject/index.html
Physician locator: https://apps.ama-assn.org/doctorfinder/home.jsp
Disease-specific Organizations and Resources
Arthritis, Arthritis Foundation: https://www.arthritis.org/
Auto-immune Disease, American Autoimmune Related Diseases: https://www.aarda.org/
Cancer, American Cancer Society: https://www.cancer.org/
Cancer, Society for Integrative Oncology: https://integrativeonc.org/
Crohn’s and Colitis Disease, Crohn’s and Colitis Foundation: http://www.crohnscolitisfoundation.org/
Diabetes, American Diabetes Association http://www.diabetes.org/?loc=logo
Endocrine-related Disease, American Thyroid Association: https://www.thyroid.org/
Endocrine-related Disease, Pituitary Network Association: https://pituitary.org/
Epilepsy, Epilepsy Foundation: https://www.epilepsy.com/
Heart Disease, American Heart Association: http://www.heart.org/
Hepatitis C, Caring Ambassadors Program: https://hepcchallenge.org/
HIV/AIDS, The Body: http://www.thebody.com/
Lung Cancer, Caring Ambassadors Program: https://lungcancercap.org/
Lung Disease: http://www.lung.org/
Lupus, Lupus Foundation of America: https://www.lupus.org/
Lyme Disease: https://www.lymedisease.org/
Multiple Sclerosis, National Multiple Sclerosis Society: https://www.nationalmssociety.org/
Pain (list of organizations): http://www.forgrace.org/resources/pain-organizations/
Parkinson’s Disease, Parkinson’s Foundation: http://parkinson.org/
Sickle Cell, Sickle Cell Society: http://www.sicklecellsociety.org/
Substance Abuse and Mental Health, SAMHSA: https://www.samhsa.gov/
Stress Management
National Institute of Mental Health: https://www.nimh.nih.gov/index.shtml
Stress and health overview: https://medlineplus.gov/ency/article/003211.htm
Integrative approaches to stress and anxiety: https://nccih.nih.gov/health/stress
Find a therapist: https://www.goodtherapy.org/find-therapist.html
American Psychological Association Psychologist Locator
Center for Mindfulness in Medicine, Health Care, and Society, University of Massachusetts
Support System
TIP: Most disease-specific organizations offer online and in-person support groups and services.
Community forum and information sharing platform for individuals with chronic disease: https://www.patientslikeme.com/
Social networks for individuals with chronic disease: https://www.myhealthteams.com/
Platform for building support website for an individual health journey: https://www.caringbridge.org/
Online meal organizer and calendar: https://www.mealtrain.com/
Well-being
University of Wisconsin-Madison, Center for Healthy Minds: https://centerhealthyminds.org
National Institute of Mental Health https://www.nimh.nih.gov/index.shtml
National Sleep Foundation: https://sleep.org/
Well-being concepts and practices, Taking Charge of your Health and Well-being: https://www.takingcharge.csh.umn.edu/
Project Happiness: https://www.projecthappiness.org/
Book recommendation, The Art of Happiness: https://www.amazon.com/Art-Happiness-10th-Anniversary-Handbook/dp/1594488894
Complementary Medicine Systems and Therapies
National Center for Complementary and Integrative Health: https://nccih.nih.gov/
Cochrane Complementary Medicine Systematic Review database: http://cam.cochrane.org/
University of Minnesota Center for Spirituality& Healing, Taking Chare of Your Health and Wellbeing website: https://www.takingcharge.csh.umn.edu/
National Center for Integrative Primary Healthcare, patient resources: https://nciph.org/public.html
National Cancer Institute, Office of Cancer Complementary and Alternative Medicine: https://cam.cancer.gov/
Society for Integrative Oncology: https://integrativeonc.org/
Natural Medicines Comprehensive Database: http://naturaldatabase.therapeuticresearch.com/home.aspx?cs=&s=ND
Complementary Medicine Systems:
National Ayurvedic Medical Association: http://www.ayurvedanama.org/
American Association of Acupuncture and Oriental Medicine: https://www.aaaomonline.org/
American Institute of Homeopathy (membership institute for medical professionals also practicing homeopathy): https://www.homeopathyusa.org/
The American Association of Naturopathic Physicians: http://www.naturopathic.org/
American Chiropractic Association: https://www.acatoday.org/Patients
Diet, Nutrition, and Healthy Weight
Center for Science in the Public Interest, Eating Healthy: https://www.cspinet.org/page/what-eat
True Health Initiative, Research on diet and health: http://www.truehealthinitiative.org/research/
CDC Healthy Weight website: https://www.cdc.gov/healthyweight/physical_activity/index.html
American Dietetic Association: http://www.eatright.org/
Dietary Supplements, US Food and Drug Administration: https://www.fda.gov/Food/DietarySupplements/
Foods that fight inflammation: https://www.health.harvard.edu/staying-healthy/foods-that-fight-inflammation
DASH Diet Eating Plan, National Heart, Blood, and Lung Institute: https://www.nhlbi.nih.gov/health-topics/dash-eating-plan
Environmental Working Group, Dirty Dozen foods list https://www.ewg.org/foodnews/
Natural Medicines Comprehensive Database: http://naturaldatabase.therapeuticresearch.com/home.aspx?cs=&s=ND
USDA Food Composition Database: https://fdc.nal.usda.gov/
Exercise
Physical activity overview, benefits, and guidelines: https://www.cdc.gov/physicalactivity/index.html
President’s Council on Fitness, Sport & Nutrition: https://www.hhs.gov/fitness/index.html
The National Center on Physical Activity and Disability: https://www.nchpad.org/
Exercise videos: https://www.fitnessblender.com/ and https://www.youtube.com/
Find your local YMCA: http://www.ymca.net/find-your-y/
Consumer Government Resources
Phone: 800-514-0301 (voice) or 800-514-0383 (TDD)
Centers for Disease Control and Prevention
www.cdc.gov
Department of Justice
www.justice.gov/
Equal Employment Opportunity Commission
For questions:
Phone: 800-669-4000 (voice) or 800-669-6820 (TDD)
To request documents:
Phone: 800-669-3362 (voice) or 800-800-3302 (TDD)
Food and Drug Administration (FDA)
Office of Special Health Issues
Parklawn Building, HF-12
5600 Fishers Lane
Rockville, MD
Phone: 800-FDA-1088
www.fda.gov
Contact the FDA to report side effects or other problems with drug treatment.
Food and Drug Administration (FDA), Single Patient Investigational New Drug Program
fda.govPatients who are not eligible for a clinical trial and who are in an immediate medical crisis may be able to receive drugs that are not yet FDA-approved. Your doctor would have to apply to the FDA for permission to use the drug, an approval known as a Single Patient IND for Compassionate or Emergency Use. Contact information appears below. The FDA usually responds to an application within 24 to 48 hours.
FDA Voices
https://www.fda.gov/NewsEvents/Newsroom/FDAVoices/ucm628487.htm
We believe patients are experts when it comes to their health conditions. Ultimately, they’re the ones who can share aspects of their diseases that even our most qualified doctors and scientists couldn’t possibly know.
Medicare Equipment and Supplies Program
Medicare contract suppliers or by calling 1-800-MEDICARE (1-800-633-4227).
National Council Against Health Fraud
Phone: 909-824-4690
Social Security Disability Line
Phone: 800-772-1213
U.S. Department of Health and Human Services
www.healthfinder.com